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Good news!!
April 25th, 2009 by Chris

Well as some of you know I am busting but in PT because I reverted back a bit from where I was post treatment.  In just over 1 month time, I have improved on the Berg Balnce test from a 43 out of 56 to a 50 out of 56.  That makes me happy as all heck.

In PT I actually made a running motion in the water this week.  I had to hold onto the bars but I was able to do it.  I am also able to march in the water as well.  It’s truly amazing.

BTW – Standard Insurance, specifically Michelle, it does not mean I can work.  Sad I have to disclaimer myself lol.

At church last week my Pastor and a few other people said I was walking better.

I am glad I had the Walkaide to keep my leg muscles from atrophy or it wouldn’t be going this well.

Sorry folks but it just blows my mind that in Fecruary of 2007 I couldn’t stand up barely, I couldn’t pee normally and had to sit because I couldn’t stand that long, had to shower sitting, took 4 hours of naps a day, wore glasses, had sever cognitive issues, mood swings,  suffered from tremors, suffered from severe spasticity, and was patiently waiting to die because I was so depressed.  Today, I can stand up with my eyes closed, my bladder works great and my urgency is improving because I am working on it, -oh I stand again to pee lol, I stand in the shower, rarely take a nap even if I am tired, no longer use glasses, have no issues remembering anything now, mood swings have stopped, still pop of a twitch every so often( 1 or 2 per 2 week period) but not daily for hours at a time, spasticity has let up but is still there but it allows me to walk and stand now, and am happy to say I am patiently waiting for Monday so I can continue to improve and live my life.

Wow am I glad God helped me find Dr. Kerr by putting Brett there for me.

3 Responses to “Good news!!”
  1. rossana Says:
    April 26th, 2009 at 11:37 am

    Chris – This is outstanding; best of luck to you. I have friends with this terrible disease – when the heck will there be controlled clinical trials on this protocal????

    Thanks

  2. Chris Says:
    April 26th, 2009 at 11:40 am

    I am in the phase 2 trial but Johns Hopkins is putting people through this off label as fast as they can. Go to the HiCy section of my site and get the contact info and see if you qualify. It’s covered by insurance.

  3. Samantha & Trevor Says:
    May 23rd, 2009 at 11:40 pm

    Great to hear things are going well! We think of you all the time. Many many hugs!!!