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Back to the same ‘ol same ‘ol…MS forums or Days of Our Lives?
August 23rd, 2008 by Chris

I made the mistake of reading some of the MS forums out there and what was being said about Revimmune. I tell you what…good grief lol.

Keri you are a saint, watch out though that *&%$@ from that one forum (the airplane chic lol) will go after ya!

My wife did bring up to me the fact when my MS was still active and the lesions in my Temporal Lobe were more numerous I was a bear too so I will attribute her attitude to MS lol.

I noticed something last night that is really cool. The back of my right hand is feeling everything normally again. I no longer “have a glove on.”

My fatigue is gone from the heat. Fatigue used to always be there but I can safely say the 100 degree weather was the culprit. I’m back to awake all day again.

Bladder is normal. Bowel is Normal. Sleep normal.

Can’t drink to much. Every nerve issue is magnified by to much booze. Had to much the other night and my bladder was the size of a mustard seed. Lesson learned.

I’m going to need to re-time my Walkaide again because I am walking better. As I walk better and the muscles build it’s changing my gait so the device needs to keep up with my recovery.

–Do you have any clue how cool it is to go grocery shopping again? To walk into the store or doctors office?

Anyhow I hit 6 months out in September and the next post will be Chenell’s. She wants to put something up here. She is going to put up some pertinent medical stuff from my follow up reports. Namely how I have improved in everything related to the testing they do.

Keep on keeping on…


8 Responses to “Back to the same ‘ol same ‘ol…MS forums or Days of Our Lives?”
  1. maggiemae Says:
    August 25th, 2008 at 9:40 am

    I check this page out every day and can’t wait to read about how you are doing. It makes me feel hopeful. Thanks.

  2. Chris S. Says:
    August 25th, 2008 at 12:27 pm

    Man oh man were you crusified on the forums or what. I stay away from posting on any of the forums for that reason alone. I still go to them just to read whats up with everything and everyone. I guess leason learned. haha…

    Chris S…

  3. Ally Says:
    August 25th, 2008 at 1:37 pm

    Chris I totally know who you are referring to. She has a bunch on minions as well. She attacked me many times in her forum for nothing. She is really mean, you shouldn’t let you get to you though I think she’s kinda crazy. lol

    Anyway, I am so glad to read that you are still improving each day and doing well. I want this treatment so bad, but I have to admit I a little scared but I might go for it anyway. I am so tired of this disease!

  4. Chris Says:
    August 25th, 2008 at 1:40 pm

    Waiting around to see if you are going to wake up a cripple is scarier than this easy easy easy easy treatment.

  5. Lew Says:
    August 25th, 2008 at 2:07 pm

    Hell Yes! I’m getting my MRI in two weeks. I’m so tired of going downhill. My 5th Tovaxin injection is on 9/9 and to date is has done bupkus. I hate to say I wasted two years of accelerated MS progression, but at the time, I thought that was it. It just doesn’t seem to work on me. Oh well, my Mom is from Balmur anyway and she is going to be my companion through all this. I can hardly wait. Just like Chris said, I don’t want to wait around and wake up a cripple. If I do, I do, but it won’t be for lack of trying.

  6. Chris Says:
    August 25th, 2008 at 2:12 pm

    Congrads Lew!

    Thank God someone out there understands the concept of waiting to see what happens is not a good way to fight a disease!

  7. Ally Says:
    August 25th, 2008 at 4:25 pm

    I don’t think people want to wait to see what happens. it’s just that we don’t have much of a choice.

    As for being treated with revimmune is not anoption for everything due to other health reasons.

  8. Pam Says:
    August 29th, 2008 at 12:20 pm

    I have been following your story for some time now. All I can say is that this is totally amazing! I am so happy for you, and I thank You for having the courage to do the treatment, and post all these things.

    I have just been dx in the last year or so, and still very mild. This is something I will keep following up on though. It would be great if this will eventually be offered in every major city, and something insurance wouldn’t bat an eyelash at for approving.

    Thank you again, and I wish you the best!