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I know this bugs some of you guys….more good news!!
July 24th, 2008 by Chris

Well I got my big ‘ol Splint off yesterday. By the time I went to bed last night some things were already getting better. I thought my balance was all crazy but the minute…the minute that thing got off it was back to normal.

It cooled down yesterday afternoon for a bit and for the first time in a couple of days I felt better too. Keep in mind last summer at 80-85 degrees I was shot. It hit 100 downtown yesterday. I still felt good enough to go with my dog outside and play.

Here is a question for some of you: When you have the flu, do you feel better the minute the virus is dead? Here is another one: If you have cancer do you heal from it over night? A different question: When you have a car accident, if the accident isn’t happening anymore does it mean you didn’t have an accident at all?

OK, then why in the hell do some of you people expect me to be out running? Good God! I just went through 4 years, or maybe as many as 15 or more years of having my body torn to hell. Let me heal!! People are showing Myelin repair four years out and more from HiCy!! I am 4 friggin months out! Let me heal!

Yes I have MS damage. Yes I still have MS related issue’s.

Some of us who have gotten this and who may get it may need to get a grip.  Cure for some of us has got NOTHING to do with getting better.  I have gotten a bot better yes.  I may not get one itty bit better than I am but I am still better than I was.  I may have had the disease too long.

I believe good ‘ol HiCy is going to actually cause MS to be diag’d different now.  I also believe those with PPMS may not be considered MS anymore and may get their own disease named.

I believe when you first show symptoms and if this would have been done to all of us right away, before the disability set in, we would all be running again in no time.

The simple fact of the matter is I may never get one bit better than I am right now but the fact I know others will more than likely never get as bad as me is absolutely wonderful to feel.

Folks you can expect some degree of improvement…Chris S told me to tell you all his fatigue and heat sensitivity is gone too…from this treatment.  If you have had it to long their is a point that the improvements may stop.

If you have had this disease for a long time and had some disability set in for any amount of time, and you expect HiCy to make you like you were before MS got to you, you are going to be disappointed.  No, for all of us that don’t get all the way better ( and I don’t expect to ever be 100%), we need modern medicine to fix the rest and I bet it’s stem cell related.

Until then I still feel better and continue to do so everyday. Sorry to disappoint.

4 Responses to “I know this bugs some of you guys….more good news!!”
  1. Chris S. Says:
    July 24th, 2008 at 12:18 pm

    Chris Y.
    People are already asking when I am going off disability and returning to work. I hear you loud and clear. number 1: it’s my business. number 2: let me heal. number 3: I got 8 years of catching up to do. Sheesh!!!

    Chris S.

  2. Patricia Says:
    July 25th, 2008 at 11:06 am

    Chris, I think a lot of people with MS (me included!) want a miracle. However, it makes sense that this is not a day/night thing. Your body has been through hell and it will not be perfect again right away, and maybe never. If HiCy can STOP the disease then we can do the best we can to fix what has been damaged. Just knowing I would not be getting steadily worse would be wonderful. Hang in there and keep after it!

    Patricia

  3. Mary Says:
    July 27th, 2008 at 1:55 am

    oh, people. I would guess that feeling you are getting is from people excited about the treatment. We’ve been following your progress, and have given us quite a bit of hope. Thanks for spreading the word!

  4. Cathy Says:
    July 28th, 2008 at 8:48 pm

    Hey Chris – I’ve been following your blog up here in Canada for a few months now. Keep spreading the word. Because of you I got the WalkAide – still have to do alot of fiddling around with it but I feel even the slightest improvememnt is amazing. I’ve watched your videos and I think your improvement is incredible! I’m going to start researching whether a Canadian can have this done at JH. Keep blogging!