« Whew…what a weekend!! | Just back from appt @ JH »

Tomorrow we’re back on our way to Baltimore!
June 16th, 2008 by Chenell

Tomorrow we are on our way to Baltimore for Chris’ 3 month follow-up appointment. I apologize for my lack of updates as of late, it’s been a whirlwind the past few weeks with my father being in the hospital and all. I am happy to say as of Wednesday he is back home starting his long road to recovery.

Chris continues to be doing better and better. Don’t get me wrong, he still has some bad days. Chris’ custom brace finally came in for his knee. Chris is now walking around pain-free with the WalkAide and brace. The brace is a bit cumbersome but that is something he’s wiling to deal with to get better.

As part of Chris’ 3 month follow up he had to have an EKG, ECHO and an MRI of his brain and spine. We had no problems with the first two tests but faced a few minor setbacks when it came to the MRI. The first time he went in they didn’t have the work order. So we go that taken care of and he went in again. This time he was unable to handle the confined space of the MRI. So they recommended we try the open MRI. It is nice because it is open but it has the limitations of being slower. Chris decided he would take some of the Ativan he got for nasea because it is really an anti-anxiety drug. It worked for the most part but made him a bit fearless (scary drive there to say the least). They got about half of the tests done before they had to quit. It had been 3 hours and Chris’ back was killing him. This was Friday. So now we had to go back today to finish the MRI of the spine and the contrast scans. They started off on his back again and the tech asked if Chris could handle the closed MRI because it would be faster. We tried it again. The Ativan seems to help, plus having me there letting him know how much time was remaining in each scan tended to help him quite a bit. Chris was surprised to have freaked like that – he’s had maybe 6 or more MRIs in the course of his MS.

We got a disc and the films of the MRI. We had to look of course. We aren’t doctors so I am not going to post any of our speculations until the docs at JH get to review the films. Things do look go to say the least. :)

We have posted some new videos of Chris and his walking abilities here at three months. We plan to keep on posting videos at each follow up so you guys can really get an idea of Chris’ progress. I am also happy to say that I fixed the page with the videos from Sept 2006 that I accidentally saved over before. Now you can compare Chris to before Tovaxin when he really wasn’t too bad, to Feb of 2008 where he was at his worst to what he’s like now.

I am also happy to say we’ve added some new photos to Chris’ ‘Post HiCy’ photo album. As you can see he’s been keeping quite busy. :)

And people say there’s no such thing as miracles. Rubbish!

It’s late and we fly out tomorrow morning. Chris will be seeing Dr. Kerr at 4:30 on Wednesday and then we fly back Thursday afternoon. I am off to bed!

Maybe we’ll be seeing some of you soon! :)


3 Responses to “Tomorrow we’re back on our way to Baltimore!”
  1. Maggiemae Says:
    June 17th, 2008 at 7:08 am

    Wow and more Wow. You actually brought a smile to my face this morning.

  2. pvns2005 Says:
    June 17th, 2008 at 1:16 pm

    Good Luck brother.

    I will get my first HiCy treatment on the June 25th.

    Chris S.

  3. Loobie Says:
    June 18th, 2008 at 10:31 am


    Just the change in your facial expressions and in your eyes is noticeable. Keep it up man, you’re looking good. Glad to see you doing all you can. Give it hell!