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So many doctor appointments… and still improving!
May 7th, 2008 by Chenell

Wow it takes a lot of people to ‘rebuild’ Chris! He is seeing the chiropractor 3 times a week now and started physical therapy on Monday. They gave him some exercises to do twice a day and changed his appointments to only twice a week for 6 weeks instead of 3 times a week for 12 weeks. Last week we also went and saw Marleta at Hanger Orthopedics to have Chris’ WalkAide refitted. Now I really need to get a new video up because he walks so much better with the help of the WalkAide.

Tomorrow we go back for more blood tests to see where Chris’ numbers are. Well, we won’t see them but the doctors will. I am sure they will let us know if anything is amiss.

As I am writing this Chris is doing his exercises. It’s amazing how simple of an exercise can wear his legs out. These exercises seem to be improving his legs on a nearly daily basis. I can’t wait to see what he’s like in 6 weeks.

We got our flight and hotel booked for the June trip to Baltimore. I don’t know how many more trips we’ll be able to make before I run out of o% credit cards. I know that is a terrible way to pay for things but we have no choice in the matter. Right now with myself being unemployed we are counting on our family for money for the bills and food. I think Chris might be qualified for Social Security Supplemental Income (SSI). They just take so long to make a decision that we may not be qualified by the time it started coming in. We’ll look into it. I may look in to a part-time job stocking shelves at night or get a paper route. I am just trying to have faith that my business will take off. I did send out 800 postcards advertising websites to new businesses. I got my first call today! We’ll see if it pans out to a job. I have another 1700 to send off but I don’t have the postage for them just yet.

At the end of the month Chris will be making an appearance for WalkAide at a convention being held at a hotel here in downtown Denver. It’s always a great way to meet a lot of people. We will be spreading the word about HiCy to MS patients, for sure! We told Chris’ chiropractor, Dr. Trupp about everything and he told us about a friend he had that committed suicide because she couldn’t handle having MS. People need to know this is out there so they can at least have some hope. I believe your mind-set has a lot to do with how your disease progresses. Being depressed, negative, stressed out and bitter will only make your body weaker and allow the disease to attack more easily.

I am not sure if I mentioned this or not, but Chris has started taking Copaxone again at the request of Johns Hopkins. He will be on it for 6 months to a year depending on which trial they decide to put him in. It has been shown in animal models that if they are given Copaxone they CAN NOT introduce MS. They are hoping to train Chris’ immune system out of the MS by using the Copaxone now when there is no disease activity.

Every day Chris is pointing out little things to me that he can do that he couldn’t before the treatment. It’s little things that normal people would take for granted. Like sitting on the edge of the bed. Before his legs were too weak to hold him up. He doesn’t get tired from chewing dinner. I never even knew he had that problem.

Well anyway, it is late and Chris has an early appointment tomorrow morning. Thank you all again for all your thoughts and prayers.

Chenell

5 Responses to “So many doctor appointments… and still improving!”
  1. Maggiemae Says:
    May 8th, 2008 at 7:01 am

    Thanks for keeping us informed. Does Chris have a new video since the one before you went to JH? Again, I’m so happy for you both.

  2. Maggiemae Says:
    May 8th, 2008 at 1:24 pm

    Silly me. I just clicked on “Photos n’ Videos” and realized that you had made a post-JH video. Looking Good!!!

  3. Sandy Says:
    May 8th, 2008 at 4:05 pm

    Had my first appt. at Hopkins yesterday. What an awesome team!!! Dr. Kerr said I was a good candidate. Got a call from insurance today and I have been approved already! The biggest roadblock is that my husband can’t be with me. He has to stay with the kids. So, I will need a really good aid or nurse with me the whole time. That makes me really nervous. And, or course, I still have to see Dr. B. and have all the preliminary tests done. I’ve had 2 kids and this is still the biggest thing that has ever happpened in my life.

    Sandy

  4. Sandy Says:
    May 8th, 2008 at 4:34 pm

    Hey Chenell,
    Rod and I would gladly pay you good money and for your travel to take care of me during my stay. Of course, we’d pay for Chris to come too!

    Sandy

  5. Ron Young Says:
    May 16th, 2008 at 4:05 pm

    But she couldn’t afford me.