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So the improvements may have leveled off…
April 27th, 2008 by Chenell

Chris must of had a lot of inflammation. The myelin damage takes longer to repair but does start the repair process when the disease is no longer attacking the body.

Chris has spent a week in the knee brace and it seems to be working. His knee is less swollen than it has been in a long time. Chris is also concentrating on walking with proper form to rehab the leg muscles. He’s found that they are more tired than they have been in a long time! You don’t realize how many muscles are involved with walking. We haven’t started his physical therapy yet. We did go to the Chiropractor on Friday for a pain in Chris’ arm.

Chris’ arm has been bugging him for a little while now. When he goes to bed his arm goes numb and he wakes up with pain radiating out of his elbow. We aren’t sure if it was pain he WASN’T capable of feeling before because the MS had numbed him or if it is from his back muscles being so spastic and pulled his spine all out of wack. Now his muscles are letting up in spacticity and things just ain’t right. The chiro did take an x-ray of Chris’ back. He’ll see it Monday when he goes in next. I may need Chris’ dad to take him to this appt since I’m supposed to be working a temporary assignment.

Chris is working out his upper body three times a week on the bowflex and doing yoga twice a week. He stretches every morning. He tries to walk to the mailbox and back (approx 100 yards.. and he’s really slow and deliberate!) every morning.

Chris’ 3 month appointment with Dr. Kerr got rescheduled to June 18th instead of July 30th. That’s coming up really soon! Also, they already scheduled his 6 month appointment for September 17th. I’m kinda glad we haven’t booked any flights yet.

I finally took the time to scan the hickman line so you can see it actual size. It’s amazing just how much of it actually goes into your heart – it must go in about 7″ into your chest!

I’d like to send well wishes to Melissa and Jamie. Melissa is currently at JH undergoing the HiCy treatment. I have setup Jamie with his own blog to document Melissa’s progress. We’re going to have to have a HiCy reunion after a while! :)

It gives me the warm fuzzies to know that people may be getting better because of this site. Personally, I tell anyone who will listen to me! I may not be able to find a job, but to tell people of this awesome treatment is a reward in itself.

I haven’t really been looking for a job. I really, really, really want my freelance business to get off of the ground. I get discouraged every time I sit and start looking at job postings. I took some steps of faith and invested money that we couldn’t really spare on a postcard mailer for a startup website. I’m sending out about 730 this first round. I need 2 people to respond with a website to break even. I think it’s very likely that I will get quite a few more than that. Working for myself would definitely give me the freedom and flexibility I need right ow with my schedule! So keep your fingers crossed!! If you know of anyone who could use my web design or other creative services please let me know!

Enough of whoring out my services. Please keep Chris and I in your thoughts and prayers, we still have a long way to go!


5 Responses to “So the improvements may have leveled off…”
  1. Marilyn Peacher Says:
    April 29th, 2008 at 10:18 am

    I was just going to send a regular e-mail but your dad said to do it this way! I haven’t visited in a while and am sorry I have been missing out. I love the new picture! We put you on the celebration list at church on Sunday-everyone is just amazed. That Hickman line is pretty scary. I can’t even imagine something like that actually going into your heart. So, What is it you do Chenell? It would be great for your business to take off as you hope. Just wanted to let you know you both have been in our prayers and thoughts. I also read Jamie’s blog. This is all very interesting even for a layman like me. Thanks so much for sharing. Marilyn

  2. Kathy Says:
    April 29th, 2008 at 7:54 pm

    I have sent my records to JH since my hospital in Chicago has to submit some more paperwork for FDA. I have spoken to one woman who has had this HYCY 3 years ago for MS and swears that it is the best thing she has ever done. She has had no symptoms since. I am so happy for you and wish you all the luck!Please keep us updated!

  3. Sandy Says:
    April 30th, 2008 at 3:06 pm

    Hi guys, still following you. I am going for my first appt. at JH on May 7th. Can’t type much because of the MS. I am hoping to be in-patient for this treatment by early June. You both continue to be in my thoughts. Keep updating. Can’t wait to see you walking some more!

  4. Jamie Says:
    May 1st, 2008 at 10:44 am

    Great update, thanks for the blog and the link!

    Kathy: That’s great news and good to hear – try and persuade your friend to write a comment on here telling us of her story!

  5. Barb Says:
    May 1st, 2008 at 11:44 am

    Great updates! I hope you continue to feel better and get to get out, more & more everyday. I am scheduled to get HyCy in July. I’m excited and nervous at the same time. This blog has been wonderful! Thanks for taking the time to share, so that we can all benefit from the hope that you are giving us! I started last July with JH and feel blessed that it is to finally happen a year later!Take care & God Bless! Barb

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