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Day 18: Home Sweet Home
April 3rd, 2008 by Chenell

We landed safely at Denver International Airport around 12:30pm yesterday. Even though the time went by quicker in Baltimore than we expected, it’s good to be home. Chris is still very anemic and may have to get some units even though he is now home. We had to take breaks in the airport because Chris would get tired very easily. I am sure the change in altitude has something to do with it as well. We have less oxygen up here than at sea level.

Chris is now on just two meds since we are home. The Valtrex he will continue to day 28 and the Bactrim which he will be on for the next 6 months. A 30 day supply of the Bactrim was only $6. It’s nice to have an inexpensive drug for a change.

We also received an e-mail from Donna from Dr. B’s office. She said that Chris only has a 5% chance of being infertile. That’s good news, we like to have options. ;) They told me they are going to be revising the Taking care of yourself after HiCy booklet they gave us. Soon as I get the new one I’ll post it for everyone. It has some very important info to know before going through this procedure.

Chris spent some time today trying to get a hold of the local and national HQ of the National MS Society. He is wanting to get them to get an article about the HiCy treatment in one of their periodicals. We’ll see what happens. We are doing what we can to “shout it from the mountain top.”

Speaking of shouting things from the mountain top, I have to give credit to our wonderful family members who have been able to support us through this whole ordeal. I thank God that my father and Chris’ father are in a position to help us out financially. They are the reason why I’m able to keep all our payments current. Chris’ father, Ron, also had some MUCH NEEDED repairs done to our house while we were gone. We got a new kitchen sink, new bathroom sinks and the railing to the basement stairs was fixed. I also want to thank our friends and even total strangers for supporting us. It has meant the world to us during these trying times.
We had to cancel Chris’ appointment to have his WalkAide reprogrammed. It was just too late in the day. We were up at 5:30am and by 11am he was ready for a nap. The anemia is just zapping his energy levels.

Chris’ knee is really paining him. Right now he is finding relief having it wrapped in an ace bandage with a brace on top of that. He may not be able to bed it much, but it’s not bugging him as much. I can’t wait to see what he’s like when his knee is fixed.

I am back on the job hunt. The job market is pretty sad right now as well. If anyone knows of a place that is hiring for administrative support, customer service, or graphic design, please let me know. In this day and age it’s not what you know but who.

I wish I had more to report on. Things are pretty quiet since we are home. We need to call and make Chris an appointment to see his family doctor to do his follow up blood tests.

I will write more next week. I thank y’all for your continued thoughts, prayers, and support.

Chenell

7 Responses to “Day 18: Home Sweet Home”
  1. Jamie Says:
    April 4th, 2008 at 9:55 am

    I’ve just realised, I’m addicted to these posts.

    I greedily check your site several times a day and rub my hands with glee when there is a fresh submission.

    It’s even better knowing that Chris is on the mend.

    Keep on truckin’ guys.

    J.

  2. pvns2005 Says:
    April 5th, 2008 at 10:36 am

    Glad to here you guys made it home safe.

    Chris S.

  3. Sharon Stew Says:
    April 7th, 2008 at 11:27 am

    I have MS. My mother had MS. I am from Baltimore and my mother-n-law works at JH in the cancer center. I am looking into revimmune for myself–mother passed in 2000. I live in Southern California now and plan to stay–but family in Baltimore. Again–I want to do revimmune for me–my typing is crazy!!

  4. Sharon Stew Says:
    April 7th, 2008 at 11:28 am

    I keep reading for updates Chris!!

  5. Dee Says:
    April 9th, 2008 at 1:38 am

    You have some very good photos and illustrations – why not sell them online – maybe at http://www.istockphoto.com

    May not make you a million, but it could help!

    Hope you are on the mend Chris
    Dee

  6. mitchq Says:
    February 12th, 2010 at 9:02 am

    i had the procudure done last june 1 at rush…doing very well :)

  7. AJ Says:
    July 29th, 2010 at 7:10 am

    im getting hi-cy at the mayo clinic in fl in about 2 months. i would love a copy of that booklet you got from jh…PLEASE