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Day 11, post HiCy – We got in trouble!
March 27th, 2008 by Chenell

Last night was a long one. We finally went to bed at 1am after Chris’ fever had been gone for 3 hours. We were waiting on the shuttle to pick us up when we got a call on the hotel phone. I answer the phone and it’s Donna from Dr. Brodsky’s office. She said we were busted, I didn’t understand what for at the time. I guess Dr. Brodsky reads this on a daily basis so I better watch what I say. LOL, no I won’t censor myself or hold back any truth just because he’s reading. It doesn’t help anyone to lie about things. Chris’ fever never did get to 100.4, but we WEREN’T supposed to fight it. I guess you’re just supposed to let it come on. So no more ice packs!! :P

DO NOT FIGHT THE FEVER! OR DONNA WILL LAY DOWN THE LAW! :)

Just let the fever happen. Dr. B said they don’t even hospitalize you unless it is really bad. The fever isn’t necessarily a bad thing, it shows that your body is starting to work again the way it should or it could mean you have a bug. Either way the doctors need to know to be able to make an informed medical decision on what to do. A Neutropenic fever is not the same thing as a fever you get when you have an infection or bug. You’re not supposed to try to break the fever like we did. We were lucky that it was a Neutropenic fever and NOT an infection that could have turned bad really quickly. So don’t try to break the fever like momma used to do. How’s that Dr. B? :)

I think I’ll be able to write the HiCy Handbook by the time this is all said and done. That is if the protocol doesn’t keep changing things on us. It’s such a new procedure, at least as far as MS goes, they are still learning what works best. We still feel safe because we are in the best hands in the world.

They ended up doing a culture on Chris’ Hickman device on each of the two tubes. They take an extra vial of blood from each tube to test for any bacteria. They changed the caps on it as well. We had to wait for all the culture results to come back before they would administer the Filgrastim. His breathing was checked by 3 different nurses throughout the whole visit. They were checking his lungs for sign of infection. He sounded fine so they didn’t do any x-rays. He got lucky this time because he didn’t get an infection.

I am glad to report that Chris’ WBC has climbed to 350 and his Neutrophils are at 245. He is well on his way up. His platelets and red blood cells haven’t dropped enough for them to give him more.

There has been a little confusion over WBC and Neutrophils and the count having to be at zero. We aren’t medical people so we are trying our best. We are definitely learning a lot as time progresses. If Dr. B wants to correct us he certainly can. :)

Neutrophils are a SPECIFIC type of white blood cell. They are the cells responsible for attacking bacteria and infection. The chart below should help demonstrate a little better the relationship of the Neutrophils (ANC) to the WBC.

3/27/08

Day 11

3/26/08

Day 10

3/25/08

Day 9

3/24/08

Day 8

3/23/08

Day 7

3/22/08

Day 6

Norm

Low

Norm

High

White Blood Cell Count (WBC)

350

100

140

80

90

350

4500

11000

Red Blood Cell Count

3.68

3.81

4.00

4.15

4.36

4.53

4.50

5.90

Platelet Count

13

14

28

46

69

97

150

350

Absolute Neutrophil Count (ANC)

245

10

0

-

-

315

1500

7800

They started the growth hormone on day 6 before everything had stopped dropping. A few of those days I don’t have any data to share but it is easy to see it dropped quickly. If they would have waited to give the growth hormone Chris would have been without an immune system for a MUCH longer time frame. I’m not sure if that’s the exact reason why they do it, but it would make sense to me. :)

** From Chris: Isn’t is interesting the relationship between what has to die all the way and MS. Are these Neutrophils somehow responsible for crossing the blood-brain barrier and thinking Myelin is an infection? It’s just something I’ve been thinking about. **

Chris is feeling twice as good as he did before they started him on the Filgrastim. He just can’t sit still. He’s not spastic or MSey at all. He’s just ready to do something so bad because he hasn’t felt like doing much in the past 2 years.

It’s late and I’m beat. I am done typing for tonight.

Keep the prayers coming. :)

Chenell

One Response to “Day 11, post HiCy – We got in trouble!”
  1. Lew (Loobie) Says:
    March 28th, 2008 at 2:23 pm

    It’s good to hear Chris has ants in his pants!