« Day 8, post HiCy | Day 10, post HiCy »

Day 9, post HiCy
March 25th, 2008 by Chenell

So today we got Chris’ lab results back and his WBC is on the way back up! Yesterday he was at 80 and today he is at 140. His red blood cells and platelets have yet to stop dropping. If those don’t increase they will give Chris a blood transfusion.

 

3/25/08

3/24/08

3/23/08

3/22/08

3/20/08

3/18/08

White Blood Cell Count (WBC)

140

80

90

350

3330

4700

Red Blood Cell Count

4.00

4.15

4.36

4.53

4.38

4.62

Platelet Count

28

46

69

97

151

182

Absolute Neutrophil Count (ANC)

0

-

-

315

-

-

Dr. Brodsky even made it by today and seemed surprised with how well Chris is doing. It’s good to hear the nurses and doctors excited over how healthy he is. Dr. Brodsky said that Chris’ numbers should be back into the normal range by the end of this weekend. The only have to give him the Filgrastim until his Neutrophils are at 500 instead of the 1000 we previously thought. He thinks that we may be able to go home by mid next week. Chris just can’t believe that we may able to be home that quickly. This trip is just a minor inconvenience compared to the last 4 years with MS.

While waiting for the shuttle bus in the lobby, Chris spotted Dr. Hesdorffer. He said Chris was looking really good too. Plus he wanted to make sure they took a look at his knee before he leaves for home.

Chris is betting that his WBC will be up around 280 tomorrow morning. They are supposed to rise exponentially from what he understands. Place your bets!

Chris and I can’t wait to go home. It will be nice for me to actually go to work and get back to a somewhat normal life. Chris is eager to start exercising with his new PT, Carmelia. We can’t wait to come back in 3 months and see what kind of improvements he has then.

When we get back home and I don’t have daily updates to do anymore I will start consolidating the info from this blog into a more organized and easier to read format. I’m hoping to give potential patients a step by step outline of what to expect before during and after the treatment. We’ve learned a lot for digging on the ‘net and forums. It would be nice to have the information all in one place. It seems even as we go through the protocol things are changing. It’s been a little confusing to say the least, even though JH has done a great job of explaining things.

Chris’ bones and joints seem to be cracking and popping more, we think as a result of the growth hormone. He is still feeling run down when doing anything physical and towards the end of the day. His red blood cell count is still dropping and he probably won’t feel better until those numbers improve.

Can’t wait to see tomorrows numbers!

More tomorrow.

Chenell

3 Responses to “Day 9, post HiCy”
  1. Jamie Says:
    March 25th, 2008 at 8:37 pm

    Hi Guys,

    Is that normal? Are they not supposed to go down to zero first?

    One thing Mel and I really would find useful if you get time is a list of the meds you needed that had to be pre-authed. That way we can work on getting them authorised beforehand.

    Thanks!

    Glad things are going well.

    Jamie.

  2. Chenell Says:
    March 25th, 2008 at 8:58 pm

    Less than 100 is considered 0 in this sense. Chris was at 80 and 90 for two consecutive days which is the protocol. No clue why but it’s OK with Dr. Brodsky. If the color of a wall was obviously Red and he said it was Blue, well, then that wall is Blue. :D
    There were 3 drugs that we needed to wait on the authorization for. The HiCy, Flucozinole, and the Valtrex. JH and UHC /insurance does it all. JH needs to explain why they want it covered. You can’t hurry it up because you do not have the pull JH does. UHC would never talk to you w/o a meeting and by then you’ll be back from JH recovering.
    For any drugs you are taking currently, tell the Dr’s at JH, and they will tell you if you should stop or not.
    If you don’t relax you are going to drive yourself crazy lol!
    If Dr. Kerr said yes so will UHC so please relax! Have a little faith!

  3. Jamie Says:
    March 26th, 2008 at 3:51 pm

    Thanks Chennell, you are 100% awesome.

    Waddaymean I don’t have the pull of JH??!

    :)

    Thanks, and you are right – I will try to chill !

    Less than 100 makes sense the more I think about it.

    Cheers,

    Jamie.