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Day 8, post HiCy
March 24th, 2008 by Chenell

We are starting to get settled in to our new routine. Brenda, the person who usually takes Chris’ blood pressure, temperature, weight, and blood, is always a hoot.

Then the nurse usually comes in and asks a series of questions and listens to Chris breathe. We are to bring in all his prescription drugs on a daily basis for them to look over. It’s redundant and a bit of a pain but we’ll take the minor inconvenience over MS any day.

Chris got some relieving news today, the nurse practitioner told Chris that it is normal to feel a bit MSey because of the Filgrastim and his low WBC. Today his WBC dropped to 80, RBC is 4.15, and platelets are at 46. Chris is scared to even get a bruise at this point.

Chris and I play a game of Rummy 500 while waiting for his lab results and IV to finish. Chris usually kicks my butt, but I’m a newbie. He’s got this crazy idea that he’s going to teach me Pinochle. He says I have to master Rummy before he does that. :P

Today we touched base with another HiCy MS patient. The nurse gave us his e-mail and gave him ours. I sent him a quick note and he replied very fast. He is in IPOP across the hall from us in HIPOP. I guess he had the fever and had to be hospitalized and on IV antibiotics. He is in touch with another patient that started the same time as him and is going home now any day. It’s nice to be able to talk to people who are going through the same thing you are. Chris is weary of any face to face meeting at this time because of his low WBC. You can’t get sick from e-mail, though! :)

If you have a HiCy blog or know someone who does, please let us know so we can get them a link on our page. Judging by the numbers there are a large number of people watching what is going on so we can use this site as a launching platform. Since each individual experience can be different the more information that is out there available, the better idea you’ll have of what it will be like. Individual blogs can be hard to find and we would love to become a centralized site for the HiCy treatment (we may repeat this paragraph for the next few posts to make sure everyone sees it). Chris had to do A LOT of digging to get the information we have, we’d like to make it easier for others.

You know you go to the grocery store too much if the checkers start recognizing you and are all friendly. I can only carry so much at a time and the refrigerator at the hotel isn’t exactly full size. I stick to mostly fresh veggies and meats because the freezer is very small and I have a hard time getting ice cubes to freeze. I try to get 2-3 days worth of stuff so I don’t have to worry about the freezer or things going bad. Besides, it’s only a block and a half and the walking is good for me.

I’m sorry I don’t have more to report, things are pretty boring right now. Boring is good though, he could get a fever and that would be exciting but thats excitement I could live without.

Thank you all for your continued support.

More to come.

Chenell

One Response to “Day 8, post HiCy”
  1. Jamie Says:
    March 25th, 2008 at 7:30 pm

    Great idea!

    We’ll contribute for sure.