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Day 7, post HiCy – Happy Easter!
March 23rd, 2008 by Chenell

From here on out I am going to refer to this as day 7, since that is how HIPOP is referring to it. It’s been 7 days since the HiCy treatment. Today, Chris’ blood counts dropped more. at 10:30 this morning Chris’ WBC was at 90. Red blood cells are down over yesterdays at 4.36 and the platelets are down to 69.

Chris got another dose of the Filgrastim. It tends to bother him towards the end of the day. He describes it as a flu-like ache. It’s mainly his pelvis and the larger bones that are paining him. The nurse said it can have an accumulative effect and it may really hurt towards the end of it. If it gets too bad they will give him something for the pain.

So today was Easter, it felt odd not to be around our family. We made enjoyed each others’ company and talked to our parents’ on the phone. I also picked up a ham steak and other fixins’ for dinner which made it feel a little more like a normal easter. I had even picked up a couple of small caramel filled chocolate bunnies to make it feel more like home.

Chris thought since it is Easter, that he should share with everyone some of the improvements he’s been having. Right now the improvements he’s been having aren’t as good as they have been even a few days ago because of the anemia.

Keep in mind these are very small improvements and none of them last all day because of the tiredness he gets from the anemia. We are seeing the most improvement in his most recently developed symptoms. Chris says the MS fog is gone and has not come back since the HiCy.

I have definitely seen Chris improve, but with the onset of the anemia, the improvements have kind of taken a bit of a break. I can’t wait to see what happens when he’s off all of the drugs and isn’t dealing with side affects any more. From what I’ve read, he’s only going to get better the more time passes.

Back to the HIPOP tomorrow morning. Same ol stuff, different day. This routine is starting to get really boring.

More to come tomorrow. Thank you all for your support!

Chenell

8 Responses to “Day 7, post HiCy – Happy Easter!”
  1. Chris Says:
    March 24th, 2008 at 6:55 am

    I have the best company I guy could want.

    Love the hotel.

    Can’t leave the room it’s Docs orders.

    I need to do something!!

  2. pvns2005 Says:
    March 24th, 2008 at 10:52 am

    You can always write a book. Ha!

    Chris S.

  3. Lew (Loobie) Says:
    March 24th, 2008 at 12:52 pm

    Hang in there bro! I can’t wait to see a new vid. of you walking!

  4. Jamie Says:
    March 24th, 2008 at 5:37 pm

    Dear United Healthcare,

    HURRY THE F**K UP!

    Love,

    Jamie.

  5. Jamie Says:
    March 24th, 2008 at 5:53 pm

    Thanks Chris,

    One thing I’ve been meaning to ask and I’ve asked publicly because others may find it useful is have JH talked to you about going on Campath after treatment as a way to ‘train’ the immune system?

    It seems to make sense to me and at least it’s not the interferon.

  6. Jamie Says:
    March 24th, 2008 at 5:53 pm

    Oh and it’s something they mentioned straight away to us.

  7. Jamie Says:
    March 24th, 2008 at 6:15 pm

    Campath? I clearly meant Copaxone!!!

  8. Lyon Says:
    March 24th, 2008 at 8:18 pm

    Sorry about the aches and pains Chris but minute by minute, hour by hour puts this unpleasant part farther and farther behind you.
    Bob