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So how much does this actually cost?
March 12th, 2008 by Chenell

I’ll get to that in a bit, but first to recap what’s gone on today.

Today we met with Dr. Hesdorffer to answer any more questions and sign consent forms. He was a very nice guy, from Britain or something, he had an accent. Every doctor we’ve met at JH has been really nice and down to earth. They all seem to think that Chris getting better is a very realistic possibility. They can’t promise anything, but based on the numbers it looks very promising. It has taken every ounce of my being not to break down and cry from happiness. It just doesn’t seem real.

After meeting Dr. Hesdorffer, we went to HIPOP to get Chris’ height and weight measured so they know what dose of Hi-Cy to give him. They also gave me some 2% Clorhexidine Glucoate cloths to wipe him down with tonight after he showers and tomorrow morning before he is admitted for the main line surgery. I guess the kill off bacteria and whatnot for 6 hours. At 9am he is scheduled to have the line put into the aortic arch where they will pump the HiCy and any other drugs directly into his heart. Chris will be on a multitude of medications while in the hospital, the HiCy is only an hour a day. He will be given other drugs for nausea and other stuff. I’ll get more info on that while he’s there.

Our last stop today was with the admitting department. I guess someone ther had been tryig to get a hold of us to let us know our out of pocket costs for this procedure. It looks like my United Healthcare plan pays 80% and we pay the 20%. Our max out of pocket for the year is $4,000. So they estimate the amount it will cost per day (5) and take 20% of that umber. Ours happens to be $4,000. They expected us to pay that upfront. I had NO IDEA and had no way of paying that much. I gave them $980 and they are going to setup payment plans for the rest of it. I think Chris just about had a heart attack and had to leave for a sec. I knew going into this my insurance coverage is downright shit when it comes down to hospitalization. I am sure it would have been cheaper to do it outpatient, but I don’t think it would be as safe. Just think, $4,000 is 20% and the max we can pay, if we didn’t have health coverage it would cost us over $30,000. Not to mention the hotel while we are here at $70/night, I had to take UNPAID time off, airfare to get here, and food. It gets expensive really quick. It will be SOOOOOOO worth it if it works. I will be so devastatingly heartbroken if it doesn’t work. I don;t even want to think that. All is possible with almighty God in control. I hope that the good Lord will decide it is time for Chris to stop suffering.

We are going out to a bar an Irish pub less than a block away for dinner tonight. The ladies at HIPOP told us to pig out because he won’t feel like eating anything for two weeks. Besides, it’s the last time for a while that I am going to see Chris this energetic. I feel it is a celebration as well. There is a very SLIGHT chance (1%) he could die from this treatment so I will cherish every moment I have with him before we start the treatment.

Anyway, I better go before I get myself all choked up. More tomorrow, I will be updating while at the hospital.


4 Responses to “So how much does this actually cost?”
  1. Chris Says:
    March 12th, 2008 at 9:49 pm

    How good is she???????

    It’s less than 1% I’ll croak…as he said, “The same chance as Avonex.”

    PS, she is definitely the worlds’ best nurse!

  2. Sandy Says:
    March 13th, 2008 at 8:41 am

    I am going downhill fast. Almost no use of my entire body. I am planning to do the revimmune, and soon. I will keep checking your site and keep you in my constant thoughts.. Please keep being painfully detailed on the horror you are all enduring. I also have crohns, sjorgren’s, raynouds. Unfortunately, my health is poor..and I am at least 20 lbs. underweight. And I hsve 2 sick kids, one on a g-tube that I can no longer really care for.


  3. Sandy Says:
    March 14th, 2008 at 8:05 am

    Hey guys,

    Keep posting!! My prayers and thoughts are with you.


  4. Kelly Says:
    August 20th, 2010 at 5:46 am

    I have ms as well with NO insurance. I’m waiting on my 2 yrs from medicaid, I have about 6mos. I wish they could lower the cost if it works this well for ms. Thanks for the encouragement :)).